Home⇛Psychology and Education: A Multidisciplinary Journal⇛vol. 18 no. 5 (2024)

Stories of Parents Having A Child With Down Syndrome: In Narrative Inquiry

Jenelyn Gaitan

Discipline: psychology (non-specific)

 

Abstract:

This study explored and documented the child-rearing stories of parents of a child with Down syndrome in the city of Iloilo. The qualitative study examined child-rearing experiences of parents with children having Down Syndrome, utilizing narrative inquiry to gather stories and insights. One family was primarily chosen with additional participants for triangulation. Through interviews and observations, the study aimed to understand the challenges, successes, and parenting aspects involved. The study addressed specific questions regarding parental experiences, successes and challenges, parenting features, and lessons learned. The findings highlighted the initial difficulty parents faced upon learning about their child's condition, eventually accepting it and supporting their child to overcome challenges. Successes included fostering understanding and patience, leading to the child's acceptance and growth. However, challenges such as caregiving responsibilities, illness, and financial strain were evident, aligning with existing research. Parenting aspects revealed a positive parenting style, balancing guidance and discipline while respecting the child's autonomy. This approach facilitated the child's development and reduced the severity of disability symptoms over time. Key lessons learned by parents included accepting their child's condition, improving parenting skills through acceptance, and realizing the importance of unconditional love and guidance in raising a child with special needs. Overall, the study shed light on the complex experiences of parents raising children with Down Syndrome, emphasizing the importance of acceptance, support, and positive parenting in promoting the child's well-being and development.



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