Experiences of Parents Having Children with Autism in an Inclusive Classroom
Leah Carpio
Discipline: others in psychology
Abstract:
The parents of children with ASD generally have increased parenting stress. This study aimed to explore the experiences of parents of children with Autism Spectrum Disorder (ASD) in inclusive classrooms. I employed phenomenology research design through focus group with five parents. Key experiences were identified, including academic hurdles stemming from societal conditions, inconsistent administrative support, societal stigma, and financial constraints impacting access to resources. The findings highlighted the importance of collaboration between parents and educators, the need for targeted teacher training, and the significance of addressing societal perceptions of autism. This research underscored the urgent need for systemic changes to enhance inclusive education for children with ASD, ultimately promoting better educational outcomes and support for families.
References:
- Aas, H. K., Uthus, M., & Løhre, A. (2023). Inclusive education for students with challenging behaviour: development of teachers’ beliefs and ideas for adaptations through Lesson Study. In European Journal of Special Needs Education (Vol. 39, Issue 1, pp. 64–78). Informa UK Limited. https://doi.org/10.1080/08856257.2023.2191107
- Alibekova, R., Kai Chan, C., Crape, B., Kadyrzhanuly, K., Gusmanov, A., An, S., Bulekbayeva, S., Akhmetzhanova, Z., Ainabekova, A., Yerubayev, Z., Yessimkulova, F., Bekisheva, A., Ospanova, Z., & Rakhimova, M. (2022). Stress, anxiety and depression in parents of children with autism spectrum disorders in Kazakhstan: prevalence and associated factors. Global mental health (Cambridge, England), 9, 472–482. https://doi.org/10.1017/gmh.2022.51
- Bullen, J. C., Zajic, M. C., McIntyre, N., Solari, E., & Mundy, P. (2022). Patterns of math and reading achievement in children and adolescents with autism spectrum disorder. In Research in Autism Spectrum Disorders (Vol. 92, p. 101933). Elsevier BV. https://doi.org/10.1016/j.rasd.2022.101933
- Campilla, J. G., Guzman, J. J., Santiago, C. J., Rigor, J. O., & Frando, M. G. (2023). Challenges and Coping Strategies of Parents in the Education of their Children with Autism. In E-DAWA: An International Multidisciplinary Research Journal (Vol. 3, Issue 2). Ilocos Sur Polytechnic State College. https://doi.org/10.56901/qwia1958
- Chand, S. P. (2024). Bridging the Gaps in Quality Education. In The Educational Review, USA (Vol. 8, Issue 2, pp. 202–210). Hill Publishing Group Inc. https://doi.org/10.26855/er.2024.02.001
- Colaizzi, P.F. (1978) Psychological research as a phenomenologist views it. In: Valle, R.S. and King, M., Eds., Existential-Phenomenological Alternatives for Psychology, Oxford University Press, New York, 48-71.
- Corbett, B. A., Muscatello, R. A., Klemencic, M. E., & Schwartzman, J. M. (2021). The impact of COVID-19 on stress, anxiety, and coping in youth with and without autism and their parents. Autism research : official journal of the International Society for Autism Research, 14(7), 1496–1511. https://doi.org/10.1002/aur.2521
- Dillenburger, K., Jordan, J. A., McKerr, L., & Keenan, M. (2014). The Millennium child with autism: Early childhood trajectories for health, education and economic wellbeing. Developmental Neurorehabilitation, 18(1), 37–46. https://doi.org/10.3109/17518423.2014.964378
- Durisic, M., & Bunijevac, M. (2017). Parental Involvement as a Important Factor for Successful Education. In Center for Educational Policy Studies Journal (Vol. 7, Issue 3, pp. 137–153). University of Ljubljana. https://doi.org/10.26529/cepsj.291
- Eden, C., & Onyebuchi, N., (2024). Parent and Community Involvement In Education: Strengthening Partnerships For Social Improvement. International Journal of Applied Research in Social Sciences. 6. 372-382. 10.51594/ijarss.v6i3.894.
- Elsayed, W. (2024). Building a better society: The Vital role of Family’s social values in creating a culture of giving in young Children’s minds. In Heliyon (Vol. 10, Issue 7, p. e29208). Elsevier BV. https://doi.org/10.1016/j.heliyon.2024.e29208
- Gaffney, H., Ttofi, M. M., & Farrington, D. P. (2021). Effectiveness of school‐based programs to reduce bullying perpetration and victimization: An updated systematic review and meta‐analysis. In Campbell Systematic Reviews (Vol. 17, Issue 2). Wiley. https://doi.org/10.1002/cl2.1143
- Jansen-van Vuuren, J., Lysaght, R., Batorowicz, B., Dawud, S., & Aldersey, H. M. (2021). Family Quality of Life and Support: Perceptions of Family Members of Children with Disabilities in Ethiopia. Disabilities, 1(3), 233-256. https://doi.org/10.3390/disabilities1030018
- Kang-Yi, C. D., Grinker, R. R., Beidas, R., Agha, A., Russell, R., Shah, S. B., Shea, K., & Mandell, D. S. (2018). Influence of Community-Level Cultural Beliefs about Autism on Families’ and Professionals’ Care for Children. Transcultural psychiatry, 55(5), 623–647. https://doi.org/10.1177/1363461518779831
- Kojovic, N., Ben Hadid, L., Franchini, M., & Schaer, M. (2019). Sensory Processing Issues and Their Association with Social Difficulties in Children with Autism Spectrum Disorders. Journal of clinical medicine, 8(10), 1508. https://doi.org/10.3390/jcm8101508
- Makin, C., Hill, V., & Pellicano, E. (2017). The primary-to-secondary school transition for children on the autism spectrum: A multi-informant mixed-methods study. Autism & Developmental Language Impairments, 2. https://doi.org/10.1177/2396941516684834
- Mallory, C., & Keehn, B. (2021). Implications of Sensory Processing and Attentional Differences Associated With Autism in Academic Settings: An Integrative Review. Frontiers in psychiatry, 12, 695825. https://doi.org/10.3389/fpsyt.2021.695825
- Meleady, J., Clyne, C., Braham, J., & Carr, A. (2020). Positive contributions among parents of children on the autism spectrum: A Systematic review. In Research in Autism Spectrum Disorders (Vol. 78, p. 101635). Elsevier BV. https://doi.org/10.1016/j.rasd.2020.101635
- Molina, S., Marauri, J., Aubert, A., & Flecha, R. (2021). How Inclusive Interactive Learning Environments Benefit Students Without Special Needs. In Frontiers in Psychology (Vol. 12). Frontiers Media SA. https://doi.org/10.3389/fpsyg.2021.661427
- Motshusi, M. C., Ngobeni, E. T., & Sepeng, P. (2024). Lack of Parental Involvement in the Education of Their children in the Foundation Phase: Case of Selected Schools in the Thabazimbi Circuit. In Research in Educational Policy and Management (Vol. 6, Issue 2, pp. 21–41). OpenEd Network. https://doi.org/10.46303/repam.2024.20
- Narot, P., & Kiettikunwong, N. (2024). A Strategy to Reorient Parental Perceptions to Create Conditions for Successful Inclusive Education: A Case Study in A Small-Sized School. In Education Sciences (Vol. 14, Issue 4, p. 358). MDPI AG. https://doi.org/10.3390/educsci14040358
- Ozan, C., & Kıncal, R. Y. (2018). The effects of formative assessment on academic achievement, attitudes toward the lesson, and self-regulation skills. Educational Sciences: Theory & Practice, 18, 85–118. http://dx.doi.org/10.12738/estp.2018.1.0216
- Padden, C., & James, J. E. (2017). Stress among Parents of Children with and without Autism Spectrum Disorder: A Comparison Involving Physiological Indicators and Parent Self-Reports. In Journal of Developmental and Physical Disabilities (Vol. 29, Issue 4, pp. 567–586). Springer Science and Business Media LLC. https://doi.org/10.1007/s10882-017-9547-z
- Papadopoulos, D. (2021). Mothers’ Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study. In Brain Sciences (Vol. 11, Issue 3, p. 309). MDPI AG. https://doi.org/10.3390/brainsci11030309
- Robinson, R.S. (2014). Purposive Sampling. In: Michalos, A.C. (eds) Encyclopedia of Quality of Life and Well-Being Research. Springer, Dordrecht. https://doi.org/10.1007/978-94-007-0753-5_2337
- Tenny, S., Brannan, J., & Brannan, G. (2022, September 18). Qualitative Study. Retrieved from https://www.ncbi.nlm.nih.gov: https://www.ncbi.nlm.nih.gov/books/NBK470395/#:~:text=Qualitative%20research%20is%20a%20type,well%20as%20further%20investigate%20and
- Trew, S. (2024). Made to feel different: Families perspectives on external responses to autism and the impacts on family well-being and relationships. In Autism (Vol. 28, Issue 8, pp. 2120–2139). SAGE Publications. https://doi.org/10.1177/13623613231221684
- Utami, A. Y. (2022). The Role of Parental Involvement in Student Academic Outcomes. In Journal of Education Review Provision (Vol. 2, Issue 1, pp. 17–21). Pusat Studi Pembangunan dan Pemberdayaan. https://doi.org/10.55885/jerp.v2i1.156