Factors Influencing the Quality of Life of Family Caregivers of Children with Neurodevelopmental Disorders (NDDs)
Kesiah C. Soriano
Discipline: health sciences (non-specific)
Abstract:
Caring for children with Neurodevelopmental Disorders (NDDs), specifically Autism Spectrum Disorder (ASD) and Attention-Deficit/Hyperactivity Disorder (ADHD), presents unique challenges that impact the quality of life (QoL) of family caregivers. Thus, this study aimed to assess the quality of life (QoL) and associated factors among family caregivers (FGCs) of children with NDDs in Isabela. Purposive sampling was used to obtain 111 respondents. QoL was measured using the Adult Caregiver Quality of Life Questionnaire (AC-QoL). The data gathered was analyzed using SPSS version 22. Inferential analysis indicated that caregivers generally experienced a mid-range quality of life (64.86%), with a notable minority reporting high QoL (20.72%). While high scores were observed in personal growth and career satisfaction, reduced QoL was found in the dimensions of caring choice, money matters, caring stress, and support for caring. The study also confirmed statistically significant differences in QoL based on age, occupation, length of caregiving, and diagnosis of the child. These findings underscore the complex interplay of factors influencing caregiver well-being and highlight the need for tailored interventions to enhance caregiver support programs and ultimately improve the quality of life for both caregivers and their children.
References:
- Bailey, R. R., & University of the Philippines Los Baños, Philippines. (2024). The phenomenology of living with a sibling with special needs. Jurnal Pendidikan Bitara UPSI, 17(2), 20–31. https://doi.org/10.37134/bitara.vol17.2.3.2024
- Beighton, C., & Wills, J. (2017). Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration. Journal of Intellectual Disabilities, 21(4), 325–345. https://doi.org/10.1177/1744629516656073
- Bergantinos, M., & Gallena, J. (2024). Implementation of Bayanihan to Heal as One Act (Republic Act No. 11469). Isabela State University Linker: Journal of Education, Social Sciences and Allied Health, 1(1). https://www.isujournals.ph/index.php/jessah/article/view/16
- Cheng, H., Chair, S., & Chau, J. (2018). Effectiveness of a strength-oriented psychoeducation on caregiving competence, problem-solving abilities, psychosocial outcomes and physical health among family caregiver of stroke survivors: A randomized controlled trial. International Journal of Nursing Studies, 84, 84-93.
- Dervishaliaj, E. (2013). Parental stress in families of children with disabilities: A literature review. Journal of Education and Social Research, 3(2), 173-178.
- Gomez, I. N., & Gomez, M. G. A. (2013). Quality of life of parents of Filipino children with special needs. Education Quarterly (University of the Philippines Diliman), 71(2), 42–58.
- Kotzampopoulou, I. (2015). Quality of life in families having a child with intellectual disabilities [Master’s thesis, University of Oslo]. DUO.
- Lasco, G., Nuevo, C. L., Nolasco, M. P., Famaloan, F. N., Bundoc, J. R., Capili, D. S., & Bermejo, R. (2022). "It’s as if I’m the one suffering”: Narratives of parents of children with disability in the Philippines. Acta Medica Philippina, 56(5), 30-36.
- Letovancová, K. M., & Slaná, M. (2022). Factors influencing the quality of life of parents raising a child with a disability. Kontakt, 24(2), 154–162. https://doi.org/10.32725/kont.2022.019
- National Council on Disability Affairs. (2024, May 8). Retrieved from National Council on Disability Affairs: Isabela. https://ncda.gov.ph/isabela/
- Parkes, J., Caravale, B., Marcelli, M., Franco, F., & Colver, A. (2011). Parenting stress and children with cerebral palsy: A European cross-sectional survey. Developmental Medicine & Child Neurology, 53(8), 737-744. https://doi.org/10.1111/j.1469-8749.2011.04014.x
- Rañada, J. K., De Mesa, P., Castillo, J. R., & Astoveza, Z.-J. (2024). Fruits and vegetables game-based learning application for kids using augmented reality. Isabela State University Linker: Journal of Education, Social Sciences and Allied Health, 1(1). https://www.isujournals.ph/index.php/jessah/article/view/47
- Roeper, M., Hoermann, H., Dafsari, R., Koestner, F., Mayatepek, E., Kummer, S., & Meissner, T. (2022). Anxiety, depression, and quality of life in parents of children with congenital hyperinsulinism. European Journal of Pediatrics, 181(3), 1147-1156.
- Schlebusch, L., Chambers, N., de Vries, P. J., Rosenstein, D., & Erasmus, P. (2022). Supporting caregivers of children with developmental disabilities: Findings from a brief caregiver well-being programme in South Africa. Autism, 28(1), 199-213. https://doi.org/10.1177/13623613221133182
- Thapar, A., Livingston, L., Eyre, O., & Riglin, L. (2022). Practitioner review: attention‐deficit hyperactivity disorder and autism spectrum disorder – the importance of depression. Journal of Child Psychology and Psychiatry, 64(1), 4-15. https://doi.org/10.1111/jcpp.13678
ISSN 3082-3706 (Online)
ISSN 3082-3692 (Print)