Home⇛Psychology and Education: A Multidisciplinary Journal⇛vol. 33 no. 5 (2025)

Being a Sibling to an Individual with Special Needs: A Phenomenological Study

Princess Hermione Cerbito | Andrea Grace Gamutan | Nicole Jade Janiola

Discipline: others in psychology

 

Abstract:

This study explored the experiences of being a sibling to an individual with special needs. This study aimed to gain insights on the experience of being a sibling to an individual with special needs, specifically answering the following questions; how may the experience of being a sibling to an individual with special needs be described, what is the meaning of their experience of being a sibling to an individual with special needs and what essence can be formulated based on the findings of the study. Six participants were interviewed based on the inclusion criteria of the study. This study was conducted at Barangay Zone III, City of Koronadal. The researchers utilized Colaizzi’s seven-step method in data analysis. This study offers a new perspective on family dynamics and the lived experiences of siblings within families with children who have special needs. The findings reveal that being a sibling in this context is particularly challenging, as they often assume and fulfill parental roles and responsibilities. The themes that emerged from the SOP 1 are the following; self-sacrifice, selfless caregiving, compassionate caregiving, empathic understanding, and self-development. For SOP 2 the themes that emerged are fortitude, developing personal and emotional awareness and embracing optimism. The essence of this study describes this phenomenon as “a state of altruistic commitment”. This study contributes valuable insights for parents, educators, and support systems in understanding and addressing the needs of siblings of individuals with special needs.



References:

  1. Adler, A. (1924). The Practice and theory of individual Psychology. London: Kegan Paul, Trubner & Co.
  2. Alam, A., Ibrar, M., & Khan, P. (2017). Socio-economic and psychological problems of the senior citizens of Pakistan. Peshawar Journal of Psychology and Behavioral Sciences (PJPBS), 2, 249-261. 10.32879/pjpbs.2016.2.2.249-261. https://www.researchgate.net/publication/333373522_Socio-Economic_and_Psychological_Problems_of_the_Senior_Citizens_of_Pakistan
  3. Al Hashemi, A. (2018). People with special needs. 10.13140/RG.2.2.17036.16002.
  4. Bawalsah, J. A. (2016). Stress and coping strategies in parents of children with physical, mental, and hearing disabilities in Jordan. International Journal of Education, 8(1), 1948-5476. DOI: 10.5296/ije.v811.8811
  5. Benderix, Y., & Sivberg, B. (2007). Siblings' experiences of having a brother or sister with autism and mental retardation: A case study of 14 siblings from five families. Journal of Pediatric Nursing, 22(5), 410-418. doi:10.1016/j.pedn.2007.08.013
  6. Birch, E., Cheng, C., Hughbanks-Wheaton, D., Morale, S., O'Connor, A., & Subramanian, V. (2012). Visual acuity assessment of children with special needs. American Orthoptic Journal, 62(9).
  7. Budzyna, D., & Buckley, D. (2023). Ecological theory. Pressbooks. https://rotel.pressbooks.pub/whole-child/chapter/ecological-theory-2/
  8. Burke, M., Taylor, J., Urbano, R., & Hodapp, R. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 117(1), 33-47.
  9. Calderwood, B. (2021). What is special needs? Overview and Types. Study.com. https://study.com/learn/lesson/special-needs-overview-types.html
  10. Cherry, K. (2023). Motivation: The driving force behind our actions. Verywell Mind. https://www.verywellmind.com/what-is-motivation-2795378
  11. Cherry, K. (2023). Kurt Lewin and Field Theory. Verywell Mind. https://www.verywellmind.com/kurt-lewin-biography-1890-1947-2795540
  12. City of Government of Koronadal (n.d.). Retrieved May 17, 2024, from https://koronadal.gov.ph/
  13. Cuskelly, M., & Gunn, P. (2016). Maternal reports of behavior of siblings of children with Down Syndrome. American Journal on Mental Retardation, 97, 521–529.
  14. Creswell, J. W., & Poth, C. N. (2018). Qualitative inquiry & research design: Choosing among five approaches (4th ed.). SAGE.
  15. Dariotis, J. K., Chen, F. R., Park, Y. R., Nowak, M. K., French, K. M., & Codamon, A. M. (2023). Parentification Vulnerability, Reactivity, Resilience, and Thriving: A Mixed Methods Systematic Literature Review. International Journal of Environmental Research and Public Health, 20(13), 6197. https://doi.org/10.3390/ijerph20136197
  16. Davis, K. (2012). Siblings of children with disability. Melbourne: Raising Children.
  17. Friales, W. (2015). A phenomenological study of the Marist-Lay partnership. NDMU Graduate School Library.
  18. Garbe, A., Ogurlu, U., Logan, N., & Cook, P. (2020). COVID-19 and remote learning: Experiences of parents with children during the pandemic. American Journal of Qualitative Research, 4(3), 45-64. doi.org/10.29333/ajqr/847
  19. Hembra, H. et al. (2018). Experiences of persons with special needs. NDMU Library.
  20. Kale, M., & Siğirtmaç, A. D. (2020). The participation of children in caregiving of their siblings with special needs and peer relationship in rural Turkey. Early Child Development and Care. DOI: 10.1080/03004430.2020.1759573
  21. Lauderdale-Littin, S., & Blacher, J. (2016). Young adults with severe intellectual disability: Culture, parent, and sibling impact. Journal of Intellectual & Developmental Disability. DOI: 10.3109/13668250.2016.1230843
  22. Leane, M. (2019). Siblings caring for siblings with intellectual disabilities: Naming and negotiating emotional tensions. ResearchGate. https://www.researchgate.net/publication/336897344
  23. Lee, C. E., Hagiwara, M., Chiu, C.-Y., & Takishima, M. (2022). Caregiving and future planning perspectives of siblings of individuals with intellectual and developmental disabilities: Insights from South Korea, Japan and Taiwan. Journal of Applied Research in Intellectual Disabilities. https://onlinelibrary.wiley.com/doi/10.1111/jar.13033
  24. Lobato, D. J., Kao, B. T., & Schneider, J. (2017). The role of siblings of individuals with developmental disabilities in the transition to adulthood. Mental Retardation, 49(3), 203-213.
  25. Longobardi, C., Prino, L., Gastaldi, F., & Jungert, T. (2019). Sibling relationships, personality traits, emotional, and behavioral difficulties in autism spectrum disorders. Child Development Research, 2019, 1–9. https://doi.org/10.1155/2019/9576484
  26. Marks, S., Matson, A., & Barraza, L. (2005). The impact of siblings with disabilities on their brothers and sisters pursuing a career in special education. Research & Practice for Persons with Severe Disabilities, 30(4), 205-218.
  27. Merriam-Webster. (2024). Special needs. In Merriam-Webster Dictionary. Retrieved May 7, 2024, from https://www.merriam-webster.com/dictionary/specialneeds
  28. Mohamad, S., Yee, C., & Sehu Mohamad, Z. (2021). The challenges and coping mechanism of adolescents with siblings with developmental disabilities. 9, 108-125.
  29. Mophosho, M., Widdows, J., & Gomez, M. T. (2010). Relationships between adolescent children and their siblings with Cerebral Palsy: A pilot study. Journal on Developmental Disabilities, 15(3), 81. https://oadd.org/wp-content/uploads/2009/01/Mophoso_et_al_15-13.pdf
  30. Múries-Cantán, O., Schippers, A., Giné, C., & Blom-Yoo, H. (2022). Siblings of people with intellectual and developmental disabilities: A systematic review on their quality of life perceptions in the context of a family. International Journal of Developmental Disabilities. https://pmc.ncbi.nlm.nih.gov/articles/PMC10599190/
  31. Naparan, J. A., & Pabatang, L. C. I. (2023). Lived experiences of a Tagasalo having siblings with special needs: An educational implication. Journal of Educational Management and Instruction (JEMIN), 3(2), 135-148.
  32. National Council on Disability Affairs. (n.d.). Republic of the Philippines National Council on Disability Affairs; Pambansang Sanggunian Ukol sa Ugnayang Pangmaykapansanan. Retrieved January 17, 2024, from https://ncda.gov.ph/disability-laws/republic-acts/republic-act-no-10524-an-act-expanding-the-positions-reserved-for-persons-with-disability-amending-for-the-purpose-republic-act-no-7277-as-amended-otherwise-known-as-the-magna-carta-for-persons/
  33. Osman, B. (2015). How learning disabilities affect a child’s siblings. Oakland, CA: GreatKids. https://www.greatschools.org/gk/articles/how-learning-disabilities-affect-a-childs-siblings/
  34. Paul, A. M., Hussey, M. M., Woodman, A. C., Smith, A. L., & Shriver, T. P. (2022). Experiences of siblings of people with intellectual disabilities: Multiregional perspectives. Family Relations, 71(2), 671-685. https://doi.org/10.1111/fare.12608
  35. Quijano, J. (2015). The life of homegrown teachers: A phenomenological inquiry. NDMU Graduate School Library.
  36. Reimers, B. H. (2017). It’s different: Perceptions of risk and resilience in older siblings of children with disabilities. University of Northern Colorado. https://digscholarship.unco.edu/cgi/viewcontent.cgi?article=2043&context=dissertations
  37. Respicio, H. (2024). Financial assistance for children with ADHD in the Philippines. Respicio & Co. https://www.lawyer-philippines.com/articles/financial-assistance-for-children-with-adhd-in-the-philippines
  38. Risdal, D., & Singer, G. H. (2004). Marital adjustment in parents of children with disabilities: A historical review and meta-analysis. Research and Practice for Persons with Severe Disabilities, 29(2), 95-103.
  39. Rojas, M., Luque, D., & Alvarez, C. (2021). Relationships of siblings of children with disabilities from two cases analyzed. Suggestions from an educational psychology perspective. WORLDCTE. https://www.dpublication.com/wp-content/uploads/2021/08/W-2068.pdf
  40. Sapkota, K., Rana, S., Murray, N., & Gurung, P. (2022). Lived employment experiences of persons with physical disabilities in Nepal: A phenomenological study. Scandinavian Journal of Disability Research. https://sjdr.se/articles/10.16993/sjdr.860
  41. Seligman, M., & Darling, R. (2016). The economic and psychosocial consequences of disability. USA: Guilford Publications.
  42. Simply Psychology. (2024). Erikson's stages of development. https://www.simplypsychology.org/erik-erikson.html
  43. Stalker, K., & Connors, C. (2004). Children's experiences of disability: Pointers to a social model of childhood disability. Disability & Society, 19(1), 3-17.
  44. Schmidtová, V. (2018). Sibling relationships of children with disability. ResearchGate. https://www.researchgate.net/publication/326518365_Sibling_relationships_of_children_with_disability
  45. Tupas, J. (2018). The phenomenological study on the presence of self-identified gay teachers in the Department of Education. NDMU Graduate School Library.
  46. Varpio, L., Witkop, C., & Neubauer, B. (2019). How phenomenology can help us learn from the experiences of others. PubMed Central (PMC). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6468135/
  47. Victor, I. N., Hartanti, H., & Elisabeth, M. P. (2021). The dynamics of sibling relationships with a Down syndrome child. KONSELI: Jurnal Bimbingan Dan Konseling (E-Journal), 8(1), 99-106. https://doi.org/10.24042/kons.v8i1.8363
  48. Williams, P. D., Piamjariyakul, U., Graff, J. C., & Stanton, A. (2010). Developmental disability effects on siblings: Effects on well siblings. Issue 33, 39-55.
  49. Wisdom Library. (2024). Altruistic commitment: Significance and symbolism. Retrieved January 17, 2025, from https://www.wisdomlib.org/concept/altruistic-commitment

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